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Join IPF on Social Media... Tell your friends, neighbors, co-workers and those tech savvy grandchildren!
Volunteers needed. If you have an interest in serving on IPF committees, please contact Jada Aidun at 317-550-5648. We are looking for people who want to give back and get involved by using their skills and talents.
Noblesville CLIMB classes are moving. For more information call 317-550-5648.
The Indiana Parkinson Foundation has a new mailing address. When mailing to the foundation please use the following address: 14350 Mundy Dr. Suite 800 #181 Noblesville, IN 46060
The Indiana Parkinson Foundation Christmas party When: December 14th: doors open at 5:30 and dinner at 6pm Where: Radiant Christian Life Church 16162 Carey Road Westfield, IN 46074 Cost: $10.00 per person (cash only)
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Medical New and Trials:Clinical Trial The purpose of this research study is to evaluate the safety and the effects of different doses of the investigational medication or placebo taken with Levodopa (L-Dopa) as a treatment for Parkinson’s disease. You may qualify if: - You are a male or female between the ages of 45 to 85 with Parkinson’s disease
- You are on a daily dose of at least 400mg or L-Dopa
- You experience motor fluctuations
- You are willing to take the study drug as directed and participate in study tests and procedures
- You are willing to attend 13 clinics and 4 phone visits over the duration of the study – up to 23 weeks.
For qualified study participants, all investigated medication (or inactive placebo), study related tests and doctor’s visits will be provided at no cost to you for the duration of the study. Participation is voluntary and you may withdraw at any time. For more information about this study, contact: Andrea Hurt, LPN 317-963-7449 andhurt@iupui.edu
Featured PWPMember of the month Deb Williams:I grew up on a small farm in Fountain City, Indiana north of Richmond and was the oldest of three children. After High School, I attended Ball State University (BSU) and studied speech pathology and audiology. I met Bill my Sophomore year, and we married on September 2, 1972. Upon graduating from BSU I worked in a geriatric rehab center, but after a year my love of children brought me to Hamilton County, where I began working as an itinerant Speech Pathologist for several county schools. As Hamilton County grew I found myself serving Westfield Washington Schools. In 1980 my son, Mark, was born, and in 1983, we were blessed with our daughter, Jill. Raising my children was a joy, and I am so proud of the people they have become. They also have given us six grandchildren who give us a lot of joy and laughter. After being diagnosed with Parkinson’s disease I found The Climb. I love to exercise, but more than that, I have been blessed to have met so many wonderful, caring people there. In 2014, I retired and now spend my time at The Climb, babysitting for those six grandchildren, doing yardwork, sewing, cooking, and I’m always looking for a new challenge. |
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Kindred Hospice
At Kindred Hospice, we believe that each of us has the right to die pain free, with dignity, and that our families will receive the necessary support to allow us to do so. We offer compassionate specialized hospice care for the final stages of Parkinson’s. We focus on pain and symptom control with coordinated care at every level. We also offer emotional and spiritual assistance where patients deserve it….at home. We are Kindred Hospice, Where Our Care Matters.
Get to know your Board members!
Kevin Wedmore, President of Hoosier Senior Solutions, is a 42 year veteran of the financial services industry. Kevin is an author, lecturer, teacher, and recruiter and is known for his expertise in areas related to Medicaid and VA Aid and Attendance planning. He often speaks to senior groups about the process of applying for and receiving benefits to help pay for the high cost of long-term care. His insights not only include eligibility and qualification technical expertise, but also the legal and financial planning options available to families who are transitioning a loved one into long-term healthcare environments.
When he is not working for Hoosier Senior Solutions, Kevin can be found teaching classes for elder law attorneys, financial planners, social workers, and CPAs on issues related to paying for care. He enjoys time with his wife, Beth, their four children, three grandsons, and one granddaughter. Other activities of enjoyment include writing, directing, and acting in contemporary Christian dramas and playing golf. He attended Indiana University and has resided in the Central Indiana area for most of his life, currently residing in Carmel, where he is active in community projects. |
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Incontinence:
Difficulty holding urine is a common problem with Parkinson’s disease In PD, the brain’s control of the sphincter is disturbed. The bladder becomes overactive and wants to empty even when there is just a small amount of urine present. This results in following symptoms - urgency
- frequency
- incontinence
- repeated nighttime urination.
Difficulty eliminating urine is another common problem. It can be caused by a sphincter that wants to close when the bladder is ready to empty or by a bladder muscle that is too weak to expel urine. This is a concern because incomplete bladder emptying can cause accumulation of urine and the growth of bacteria. The latter can result in an infection. The symptoms of difficulty eliminating urine include: - weak urinary stream
- dribbling or leaking
- feeling that the bladder has not completely emptied
These problems should be carefully evaluated by your urologist to determine their cause. If the symptoms are PD-related, the most successful management is intermittent catheterization. Carter, Julie H. R.N., M.S., A.N.P. “Parkinson's Disease Clinic and Research Center.” Urinary Problems | Parkinson's Disease Clinic and Research Center, Parkinson's Handbook, pdcenter.neurology.ucsf.edu/patients-guide/urinary-problems. |
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Volunteer Spotlight
Meet Kelsey McClymonds one of our fellow interns. She is a senior at Fishers High School. Her interest in interning at the Parkinson’s Foundation comes from her desire to be a neurologist in the future. She will be applying to Johns Hopkins University, University of North Carolina at Chapel Hill, and Indiana University. In her free time, she enjoys yoga, and participating in the following clubs at school, National Honors Society, French Club, Science Olympiad, and Club Med. Kelsey works at Kroger click list and has two pets; a beagle/lab mix named Lucy who is 6 years old and an orange tabby cat named AJ who is 12 years old. Each year Kelsey takes 2-4 trips to Panama City, Florida to visit family that lives there.
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Apokyn
For patients with Parkinson's, oral medication known as Levodopa are most commonly prescribed. Over time on this medication patients might experience "off episodes". These episodes can happen anytime. APOKYN can be used along with your other PD medications. It is a reliable way to turn your "off time into on time" APOKYN is used by injection, to treat the loss of control of body movements in people with Parkinson's disease
Ask your doctor about how APOKYN can help you be on and live life
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Ruth Ann “Ronnie” Wade, 85, of Carmel, IN, passed away November 7, 2017. Ronnie was born August 24, 1932 in Rochester, NY
James Edward Hoff 78, of Noblesville, died Thursday, November 9, 2017
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