Join IPF on Social Media...
Facebook: Indiana Parkinson Foundation
Instagram: @indianaparkinsonfoundation
Twitter: @IN_Parkinson
Volunteers needed: If you have an interest in serving on IPF committees or in classes please contact Jada Aidun at 317-550-5648. We are looking for people who want to give back and get involved by using their skills and talents.Kroger: Re-enroll with Kroger community rewards for The Indiana Parkinson Foundation they are only good for a year! Call 1-800-KROGERS for more information.
Tulips: Spring is coming! 12 tulip bulbs for $10 all money goes to The Indiana Parkinson Foundation. Contact
Jada@indianaparkinson.org if you’re interested.
Important dates:
Group Lunch: April 26th at the Wild Egg in Fishers @ 12:15pmDine to Donate: April 20
th 10:30 am- 10:00 pm come out to City BBQ in Fishers.
Breakfast: May 19
th, 2018 @ Radiant Church 16162 Carey Rd, Westfield, IN 46074. Doors will open at 8am and breakfast will be served at 8:30am. Tickets are $10.
Lunch and Learn: April 11
th @ LivRite Gym at 12:15pm Colleen Card is coming out for a talk about in home health options. There will also be a take home lunch provided.
Support Group Carmel: April 10th at The Bickford of Carmel PD support group 10am-11am. Kim Williams will be speaking about IPF and our programs and services.
Caregiver Support Group:
April 30
th 11:15am -12:45pm @ Wild Egg (open discussion)
Support Group:April 25th @ LivRite Gym at 12:15 - 1:00 pm (Medtronics)
Greenwood Support Groups:
P.D. Support Group every 3
rd Tuesday of the month at 3:00pm. The support group is held at Mt. Pleasant Community Life Center (1
st floor meeting room).
Caregiver Support Group Every 2
nd Saturday of each month at 10:45am. This group is also held at Mt. Pleasant Community Life Center (1
st floor meeting room).
Westminster Village North Support Group:Every month on Tuesday @ 2:00 - 3:00 pm and Thursday @ 10:00 -11:00 am
Westminster Village North
11045 Prestryian Dr Indianapolis, Indiana 46236 (317)823-6841
SAVE THE DATE: The 2018 Choose to Move will take place September 15th. Please mark your calendars and spread the word. More information will be available on our website in the near future.
We would like to thank those in our community who help us with our programs and services: LivRite Fitness, The Wild Egg in Fishers, Oscar Casas and Julie McGuire with Dancing for Parkinson's, Mary Beth Campbell with Southern Care Hospice, Community Health Pavilion, The Noblesville Times Newspaper, Colleen Card with Right at Home, and City BBQ.
Topics: Four Terms to Know when Talking about Parkinson’s
By : Kelsey McClymonds
Bradykinesia Simply defined bradykinesia is slowness of movement. This can be seen during off periods when medication has worn off and if bradykinesia continues then the individual may experience increasing slowness of their muscles until they randomly “freeze”. There are five factors that contribute to bradykinesia which are muscle weakness, rigidity, tremor, movement variability and slowing of thought.
Hypokinesia Simply defined is small amplitude movements. This is often due to muscle weakness thus making movements smaller and the force of the movements much smaller. This type of muscle impairment often co-occurs with tremor at rest and with bradykinesia and/or akinesia (rigidity). Like bradykinesia, hypokinesia is caused by basal ganglia damage and loss of dopaminergic cells in the substantia nigra.
Akinesia Simply defined akinesia is muscle rigidity and inability to initiate movement. In Parkinson’s patients this rigidity starts normally in the leg and neck muscles. This rigidity often also travels to the facial muscles which is what causes the notorious mask-like facial expression of Parkinson’s patients. Once bradykinesia gets worse then akinesia can occur with the “freezing” of muscles that patients often experience.
Dyskinesia Simply defined is abnormal, uncontrolled, involuntary movement. It can either affect one body part or it could possibly spread throughout the body affect many muscle groups. It can look like fidgeting, wiggling, head bobbing or body swaying. Unlike bradykinesia, hypokinesia, and akinesia, which appear in almost all Parkinson’s patients, dyskinesia doesn’t happen quite as often. Dyskinesia often occurs due to improper levodopa dosages such as the use of higher doses of levodopa for extended periods of time.
Featured PWP
By: Terri Zeigler-Shanehsaz
The bracelet I’ve been wearing on my wrist since I was 48 years old says “Parkinson’s Doesn’t Define Me.” It does not define me; however, it is an undeniable part of my life. My name is Terri Zeigler-Shanehsaz, I’m a 52-year-old female with no family history of Parkinson’s and I have young onset Parkinson’s disease as well as Parkinson’s Syndrome Plus. Let me say this, I’m not afraid of my disease, but at times I wonder where it’s going to lead me. My goal is to stay one step ahead of it and gain all the knowledge I can to combat this uninvited brute. That said, in my quest to stay in the lead, I’ve found that the proven research has shown exercise to be a key element for my well-being. I’m pleased to say that I’ve joined the Climb in an effort to maintain my ability to stay healthy and capable of doing the things I need and want to do. The Climb is a dedicated organization that focuses on improving the lives of people who have Parkinson’s Disease.
For those of us who have PD, there can be so many symptoms, though not all of them happen to every person. Some of the commonly known ones are tremors, inability to write, muscle cramps, freezing in place, difficulties speaking, shuffled walk, leaning forward, memory problems, choking, vision complications and a compromised immune system. Though there are numerous medications that are beneficial to people with PD, I unfortunately haven’t had any success with them. Meaning, I am having to rely more on exercise, vitamins, oils, supplements, and nutrition to help with the symptoms. For me, being a wife, a mother of two and working, it is trying to keep myself up and play a vital role in my family’s comfort and growth.
With this opportunity to share some of my story, I’d like to say to everyone who reads this, that the community of people I have been involved with since having been diagnosed with PD has been nothing less than brave, kind, loving, and diligent in their trek to rise above and conquer Parkinson’s either in their own battle or in helping those who are in the battle. Thank you to each of you who inspire, encourage, and haven’t forgotten us. If you know someone with Parkinson’s or you come across someone in your daily journey who has it, take a moment of your time, look them in the eyes and let them know they matter. I think you may find there to be a special blessing in those eyes for you!